Here I am at 2 am and I can not sleep. The number one thing on my mind is my daughter and JRA juvenile Rheumatoid arthritis. My oldest has Aspergers and therapies have helped us deal with the emotional tolls and strains. JRA is killing me. I love my kids with all my heart! But to see my daughter so sick has be painful this year. She will be fine one day and then the next is a total crash. You can see it in her eyes and her face is so pale. Then the pain! She will drag herself a crossed the floor or totally be in the stroller or need to be carried. Everything with JRA has been affected. This has been a struggle. Not only seeing her in pain I feel like no one else sees it my way. I can not fix her pain. I can not say it will be OK because I don't know. I use to be so optimistic and see the other side of the rainbow but now its all grey. My little ballerina may only have a few years to dance in the rain. How do cope with this?
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